Apraxia Research Registry

CASANA is putting together a research project using information from parents like us regarding our apraxic children. I’ve known about this for a few months, but if you are like me the holidays got the best of you and you are falling behind on your to do list. I’m determined to get this finished this weekend.  I think it would be great if everyone could take the time to give the information needed so that maybe some light can be shed on Apraxia…it would be interesting to see the commonalities between some of these kids and see if there is something previous research has missed.

Here is a little information from CASANA and a link to registering…please take the time to do so, thanks!:
“What is the Childhood Apraxia of Speech Research Registry?  The Registry is a list of as many individuals with Childhood Apraxia of Speech (CAS) as possible, containing information about each child’s health and developmental history. Once data is collected and enough children are registered, this list eventually will enable authorized researchers to find possible subjects for research projects and offer families an opportunity to participate in research, if they chose. Finally, the Registry will allow researchers to examine trends and data about groups of our children with apraxia over time.”

http://www.apraxia-kids.org/site/c.chKMI0PIIsE/b.7831609/k.720D/Apraxia_Research_Registry.htm

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