About

My name is Linda and I’m a wife to my wonderful and supportive husband Chris. I’m a sister, a daughter, an aunt, a friend, but most of all… a mom.

My son Henry is 4 and he is the love of my life. He brings me joy I could not have imagined. Henry has Epilepsy and Childhood Apraxia of Speech. As time passes and I learn more information about the long road ahead of us, I find a need to document this journey as well as to share it with others. I hope this will be a place to connect with other parents and perhaps learn from each other, empathize, and to know there is someone else out there going through the same thing.

This blog will share links to helpful websites, techniques and activities I find, as well our personal stories along the way.  I want to emphasize that I’m not a doctor, or a therapist… I’m just a mom determined to find my son’s voice and find him peace from the seizures that have been taking over his life.

Thank you for visiting my blog, I’d love to hear your comments.

Linda

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4 thoughts on “About

  1. Linda, I am so proud of you! This is awesome!!! I wish I had done this years and years ago! It is so smart that you are writing everything down. I totally get the ha to the hi! It is a huge thing, that was a good day for us too! You are inspiring me to do this too. Was it hard to start?
    The walk we are doing is incredible. I am getting so many great emails and meeting local families. It really wasnt too much work. Ava is just so excited!
    I hope we can talk more one day!
    Say hello to Chris

  2. I found your blog through Armada of Love. I’m doing a giveaway today on my blog for an iPad app and was out cruising for other apraxia mamas when I found your site. Your bio sounds so similar to mine! I love reading about what other parents are doing to beat this thing.

  3. HI Linda,

    I work for a parent support program in PA. I have a parent who contacted us, wishing to talk with another parent of a young child who has a diagnosis of apraxia and epilepsy. I was searching for a match for her when I found your blog. Would you be willing to connect with this parent by any chance? It can be over email or phone depending on your preference. If you can, please email me at ncregion@parenttoparent.org or call at 570-888-1250. I think you would be such an amazing support for this mom.

    Thank you so much!
    Nicole Golden
    North Central Regional Coordinator
    Parent to Parent of PA

  4. Hi Linda,
    Thanks so much for sharing your story and information with me and all the others out there who are dealing with this particular disorder. I had mixed emotions when my husband and I found out our 3 year old daughter has Apraxia. It was hard news to take and they overwhelmed me with information and steps that would need to be taken in order to help her. I walked out of the therapists office sad and confused that my daughter was about to embark on a hard long struggle, as well as ourselves, In order for her to even start saying sounds never mind words. She is a healthy, smart, and energetic little girl but she does struggle with frustration on a day to day basis because she can not voice her feelings or needs.
    Thanks to you I have read about Apraxia through various websites you have recommended and am on my way to helping my little girl.
    Thanks again for sharing your story and taking the time to help me others understand Apraxia.I look forward to meeting and talking to you.
    Nancy

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